Thank you all so very much for praying for Micah this week. The hospitalization went fairly well. We came home late last night. The fasting on Sunday and Monday was one of our biggest concerns and it wasn’t too bad. Well, that’s easy for me to say, probably wasn’t the greatest experience for Micah! What I mean is that he tolerated it much better than I thought he would. The most traumatic thing that happened was having his blood taken on Monday. The lab techs were having a hard time finding a vein, so it was a 20 minute ordeal! Ugh! So far, he has eaten every meal from the diet that he is supposed to eat. The only problem we have had, and are still having, is that he does not want to drink very much. With this diet, there is a certain amount of food, and certain amount of liquids that he must consume. He became pretty dehydrated on Tuesday so the Dr. decided to put him on an IV to regain fluids. Wed. morning he was better and then late yesterday he decided not to drink much again. This afternoon has been better, but the Dr. wanted to have blood taken again to see if he is dehydrated again. We will know results tomorrow. One reason he isn’t drinking could be because of the Topomax (one of his seizure meds); this med sometimes doesn’t work well with the diet. So his neurologist decided to stop it as of today. If this is the reason, we should see a difference in him drinking within a few days.
Wayne and I met with the dietician several times and feel pretty comfortable with the diet. She gave us menus for two weeks. The food is easy to prepare and Micah seems to like it. It’s a lot of butter, bacon, mayonnaise, cheese, eggs, heavy whipping cream, fruit and vegetables etc. What’s not to like? We will follow up with the dietician in two weeks and learn to do all the calculating and actually making our own menus.
We ask that you please pray that Micah will drink. It gets really stressful trying to force him to drink when he doesn’t understand that he has to drink this certain amount. It also gets to be concerning because we don’t want him to get dehydrated and end up in the ER. Also, if he doesn’t drink, this diet will not work.
Thank you all for your comments and correspondence through email. It’s very encouraging and needed!