Wednesday, January 17, 2007

Finally, an update!

Well, I’m long overdue in posting this; sorry to those who’ve been wondering what’s going on with us. We’ve had a busy month since I last posted with traveling to Oklahoma and Texas. We had a great time with both families for the holidays and enjoyed seeing everyone. I would have liked to see some of you in TX who were within a couple hours drive, but we had most of our days filled. One of our gifts from Wayne’s parents were tickets to the Cotton Bowl in Dallas on New Year’s Day. Unfortunately, Nebraska lost to Auburn, but it was a fun experience for us (my (Kelly) first Nebraska game, a cultural experience).

The first thing I need to let everyone know is that we have decided to postpone the Ketogenic diet which we had been planning for Micah. I realized most people didn’t know this when I had a friend email last week and suggest that I have prayer coverage for Micah for those days he would be hospitalized. Just before leaving for the holidays we had a conversation with Dr. Raja (Micah’s neurologist). He had been to a conference with other neurologists and spoke specifically with them about Micah. Their opinion was that Micah had not been on enough of the Vigabatrin (one of his meds) to make a difference in reducing seizures. So after some discussion and prayer, Wayne and I decided to increase the med per Dr. Raja’s suggestion. We gradually increased it over 4 weeks (we are at week 4 now) and will wait for a little while longer to see if there is much improvement. Honestly, we haven’t noticed much improvement in terms of seizure activity. He is still having them daily, sometimes 2 or 3 times, and they are just as intense at times as they had been. However, all of his therapists say he seems more alert and socially responsive to them. So, it could be that he had been having seizures we couldn’t see and possibly is not having them now.
We will watch over the next several weeks and if there still has not been a lot of improvement, we will probably look at starting the diet sometime in March or April. We will keep you updated.

We did move to a our new apartment (the next building over) thanks to some very gracious friends who gave several hours of their time to help us. They even helped us clean our old apt! We have great friends! It was the easiest move we’ve ever done thanks to them! The situation is much better; it’s great to be able to live normally without worrying about making too much noise. Micah seems to enjoy crawling all over the place. When we were in Oklahoma, he started pulled himself up to stand! He is doing this often now. He can only stand supporting himself on the couch or a chair and only for a few seconds, but it’s great that he’s trying!
We should be a little more regular about posting now that we are settled.


Anonymous said...

Micah's haircut looks super, and I love these two photos. It's nice to know you have such wonderful friends who helped you so greatly to move. How gracious God is to provide them. I thank them through this blog, for they likely will be reading this. We pray for the work of God in Micah's life in whatever way His goodness provides.
Grandma Karen

Marian & Ryan said...

Thanks for doing the blog, Kelly. I've been wondering how you guys have been doing, and glad to be able to read how things are going. Micah is precious and gets more and more handsome. :) Your faith inspires my faith. Thanks for the encouragement. We love you guys.

Charley & Marianne said...

Hi Friends, we are so excited for Micah's progress. God is so good! Great haircut, what a darling boy he is! We love you lots, The Pitchfords

Tarimisu said...

I love the blog! I love the updates. We are praying. I can't wait to talk to you when we can fit it in! How sad to have to make an appointment to talk on the phone . . . but such is life these days, huh? Micah is adorable! I'm sorry you had to watch Nebraska . . . DO tell Wayne I said that!
I love you all!
Amy :o)

Tamara Brooks said...

This is my personal opinion, but I think Oklahoma is a great state to "stand" in! Micah is so cute. This blog is the best idea ever - I've got you bookmarked so I can check in on you guys regularly. Glad the new apt is working out.

Wilma said...

Hey Hey from Missoula, Montana. What a beautiful boy that Micah is. Thanks Kelly for the update. I am so thankful to be part of ya'lls family and enjoy reading what is going on. The picture of Micah's haircut is on my desktop at work and EVERYONE comments on how cute he is. Thanks Cali Womacks!!

Wilma said...